Whakarāpopototia te tuhinga:  I tangohia e tētahi kōtiro e rima tau te pakeke, i wahia, i whakakotahi anōtia, ano he papakupu, i muri i te kitenga o ngā tākuta he iti rawa te kopu mō tōna roro e tipu haere ana. Ko tōna whaea a Stacey Ciach, nō Geelong i Wikitoria, i miharo tonu ia ki te āhua o te matenga o tana tamahine a Ava. Engari i te wā i kawea e ia a Ava ki tētahi tākuta hou mō te arotake, ka kitea e rua ngā papa i mua o tōna matenga kua whakakotahi wawe - he āhuatanga onge e mōhiotia ana ko Sagittal Synostosis - e aukati ana i te tipu o tōna roro. Panuku ki raro mō te ataata. Ko Ava Ciach, e rima tau te pakeke, no Geelong i Wikitoria, e mate ana i te Sagittal Synostosis - te tikanga kua whakakotahihia nga papa e rua i mua o tana kopu, ka aukati wawe i te tipu o tona roro. Ko Ava, e ono ona tau i tēnei wā, i pā ki tētahi mahi uaua i tangohia ai tōna matenga, i pakaru ai ki ngā wāhanga, ā, i whakakotahi anōtia kia rite ki tētahi kōpaki. 'He mea whakamiharo noa iho i whakaaro ai tenei taote motuhake "Kei te awangawanga au mo te whanui o tona mahunga", 'i kii a Ms Ciach ki a Daily Mail Ahitereiria. 'Kāore ia i rerekē, kāore koe i te titiro ki a ia i runga i te huarahi, ā, ka whakaaro he raruraru kei roto i a ia. Engari he tino ātaahua ia, ā, i mea ia ka oti katoa i a ia te whakamātautau. I whakaaturia e te matawai CT he mate a Ava <unk> i kitea i te wā e 10 marama ana te tamaiti ki te rua tau te pakeke <unk> arā, he maha ngā whakamātautau hauora i mahia e ia. 'Mai i te wā i whakapumautia ai, he whakamātautau noa iho i runga i te whakamātautau,' ka mea a Ms Ciach. 'Ko te tatari te mea kino rawa <unk> he pai, he kino ranei te hua? Ko te nuinga ehara i te mea pai engari koinei anake ta matou i mahi ai. ' Ko te kopu o Ava i muri i te pokanga i muri i te'pakaru'me te whakakotahi ano. I te marama o Hepetema o te tau kua hipa, ka whakahaeretia a Ava, he mea whakairo mai i te taringa ki te taringa, ka tangohia katoa tona kopu. Kātahi ka kawea a Ava ki tētahi whare haumanu i te Royal Children's Hospital i Melbourne me te tohunga taihara kirihou, a Jonathan Burge me ētahi atu tohunga taihara roro 14 me ētahi atu...
Ko Ava Ciach, e rima tau te pakeke, no Geelong i Wikitoria, he Sagittal Synostosis. I tangohia tōna matenga, i pakaru, ā, i whakakotahihia hei papahiko. E kōrero ana tōna whaea a Stacey mō te mahinga matatini hei whakanui ake i te mōhio mō te Whakapā Mai o te Rāhoroi o te Rāhoroi o te Whare Hauora o ngā Tamariki.