Whakarāpopototia te tuhinga:  He tamaiti tokorima tau te pakeke i whānau mai me ngā wāhanga o tōna roro i te wāhi hē kua ohorere ngā tākuta mā te hikoi i te rua maero i ia rā. E mate ana a Brave Finley Lamb i tētahi mate roro onge, ko te Periventricular Nodular Heterotopia - ko te tikanga kāore he maha o ana pūtau'matā hina' i neke ki te tūnga tika. I mahue i te tamaiti, no Wallasey, Merseyside, te āhei ki te haere, ki te kōrero, ā, e 90 ōrau pea te tūponotanga ki te pāngia ki te mate kōpiro. Ko Finley Lamb, e rima ona tau, e whakaahuahia ana i te taha o tana papa a Dan me tona whaea a Sara, e mate ana i te koretake o te roro. He nui hoki te tūponotanga ka pāngia ia e ngā mate o te ngakau, o te manawa, o te kopu. Engari i miharo te whaea o Sara e rima tau te pakeke i tana taahiraa tuatahi i te tau kua hipa, a kua haere tonu ia ki te whakahe i nga raruraru ma te timata i te kura tuatahi - a ka haereere ia i te haerenga. 'I te marama o Mei o te tau kua hipa, ka whakatika ake a Finley, ka hikoi i te ruma - i miharo matou,' ka mea te whaea-rua, 37-tau. 'Kei te āhua nei he pānga ki a ia, ā, mai i taua wā kua eke ia mai i te 50 mita i te rā, ināianei ki te rua, ki te toru maero i ngā rā e rima o te wiki. 'E kī ana tōna hōtaka me eke ia ki te rua māero i te rā, ā, ka taea e ia te eke ki runga i ngā paepae i a ia anō, ā, ka eke ki runga i ngā kaupae me te rākau, he mea whakamiharo. 'I te wā i tāutuhia ai te mate PVNH ki a Finley i kīia mai ki a mātou kāore pea ia e haere, e kōrero rānei - engari ināianei kei te kura ia, e tākaro ana ki ētahi atu tamariki me tōna teina. 'Kāore e taea e mātou te whakapono ki tōna ahunga whakamua. Kāore mātou i whakaaro ka taea e ia te noho takitahi, engari ināianei kāore he take e kore ai e taea. He tino harikoa matou.' I whakahe a Finley i ngā tūponotanga ki te whai i ōna hikoinga tuatahi i te tau kua hipa, ā, ināianei e pai ana ki te haere i ngā maero e rua ki te kura. He nui te ahunga whakamua a Finley i muri i tana tiimata i tetahi kaupapa i hangaia mo ia e te Family Hope Center, kei Philadelphia, USA, e rua tau ki muri i te Paenga-whawha 2013. Ka whakahaeretia e te pokapū ngā tamariki whai hiahia motuhake me ngā whakaroa whanaketanga, ā, ka tūtohutia he whakangungu motuhake me ngā whakarerekētanga o te āhua o te ora hei whakaongaonga i te roro o Finley. I kitea a Finley he PVNH i a ia...
Ko Finley Lamb, e rima ona tau, e mate ana i te Periventricular Nodular Heterotopia. Ko te tikanga he maha o ana pūtau roro'take hina' kaore i te tuunga tika. Kāore e taea e te tamaiti kura te haere, te kōrero rānei engari kua whakaekea e ia ngā tūponotanga. Kua tīmata ia ki te kura tuatahi, ā, e haere ana ia rā e rua maero.