What is primary immune deficiency disorders?
Patient: Do you have any information for primary immune deficiency disorders? I have common variable immune disease, necessitating IVIG every 28 days for the past ten years and am always looking for recent information. I also suffer from fibromyalgia, sleep apnea, osteoarthritis and now am experiencing some heart issues (tachycardia and extra heart beats). I so hate being complicated and having to see so many doctors. My immunologist moved away some years ago and the one who replaced her won t see adults. However, the Hem/Onc doc I worked for agreed to oversee my care since the protocol was already in place. Thus, though I know he is a good doctor, I sometimes am afraid he may not be up to date on any new developments for PIDD. Thanks for your comments or reference materials. Doctor: Thank you for asking Healthcare majic. My name is Dr Ehsan Ullah & I have gone through your query.Primary immunodeficiency is a condition in which individuals are born missing some of the body's immune defences, which leaves them more susceptible to germs that can cause infections as compared to the general populations.Regarding information for the primary immune deficiency disorders, there is a list of such conditions which come under this category ... i just write here some names for your info like-Common Variable Immune Deficiency, -X-linked Agammaglobulinemia (Bruton's Disease), -Selective IgA Deficiency,-Severe Combined Immune Deficiency (boy-in-the-bubble disease). Some disorders are be quite common, occurring in as many as 1 in 500 to 1 in 1000 individuals, such as Selective IgA Deficiency . whereasOthers, such as Severe Combined Immune Deficiency, may be quite rare as one individual per million. IVIG have different indications in which they are used including your condition as PIDD .your concerns are right since you are worried about your immunologist which moved away but you should trust your current physician who as you mention your hem/onc doc .the most important aspect is thatUntreated primary immunodeficiencies may be characterized by frequent life-threatening infections and debilitating illnesses so do keep in tough with treating physician and if they will see some need for refferal then in such condition they do refer. Hope this may help you. Let me know if anything not clear. Thanks.