A Deep Journey through ALS
343183
Royce writes from a deep and creative place in her spirit. She connects you, the reader, with the challenges of her experience with love, courage, and even humor. If you know of anyone with the disease you has had to deal with it, please give them this book. They will treasure Catherine's words and love.
Marcia M. Cham,author of You Mean I Have to Look at the Body?! Stories of Dying and Living
3945947
Dennis's story is of her own pursuit to correctly diagnose and understand the mysterious debilitating illness that drastically altered her life. . . encephalitis. Her challenge to comprehend and cope with baffling symptoms while struggling with the inability of the medical community to reach a diagnosis was a difficult journey. Thank you, Becky Dennis, for sharing a much needed level of  brain injury awareness through your well-written book!
940480
Carlene is clear this is not a book about Alzheimer's.  It is about a spiritual journey.  I read it slowly and am studying new things and ideas.  It does not take away from my Christ following faith but adds to it.  There are a number of books in my library about the hated disease of Alzheimer's.  This one is for me and my journey.  Found it helpful and is causing me to dig deeper  Highly recommend
4292733
Slow Dancing with a Stranger (what an achingly lovely title) gives an all-out honest look at a devastating disease. For the many who will eventually face this diagnosis in their own life or that of a loved one, this is a vivid account of the problems and frustrations faced by both patient and caretaker.  It is a touching and beautifully written testament to the power of love.  I hadn't planned on reading yet another book about Alzheimer's disease, but I downloaded it immediately after reading The Washington Post review.  My husband died of the disease at the end or 2013, eight years after diagnosis and during our 50th year of our marriage.  He became symptomatic at the age of 63. The book describes so well the many challenges encountered by patient and caregiver. To me it spoke most honestly, and even comfortingly, about the struggles and conflicts that sometimes rage between the heart and the mind of the caretaker in the all-consuming role one commits to in caring for a loved one.  It is a role very few outside the home truly understand. I cared for my husband at home for seven years--until I suffered a mild stroke.  With the encouragement of our sons and all the doctors involved in both our care, I finally realized I had to give up my hands-on role.  I came to understand the stroke as God's gentle sign that I had done all I could in caring for him in our home.  We were lucky to find a very good assisted living facility (on just the second try) within half an hour's drive.  With the loving care of their professional staff and the eventual assistance of hospice, his final journey was peaceful.

Though our family's experience was different in many ways from Ms. Comer's, it was in many more ways similar. Some of the raw feelings she acknowledged were at times my own and I thank her for giving them validity.  This book might attract more readership  if it were classified as current events rather than healthcare, since as far as I know, the best known risk factor for developing the disease is having a brain.
1340926
Very well-written book, basically a man's account of the physical and mental symptoms of multiple sclerosis.  As a neurology resident who plans to pursue a subspecialty fellowship in MS after residency, I read this book to gain some perspective on how people experience this disease, as well as the descriptions of symptoms.  I appreciated his very honest account of what he goes through with his MS, including treatments that worked and those that didn't.  He doesn't omit talking about the difficulties of daily living, and he explores in gritty detail the side effects of MS treatment, the multiple relapses he has including a frightening bout with optic neuritis, and the challenges of deciding how and when to talk to his family about particular aspects of his MS.  Yet, this book is very uplifting in the sense that the author is living a full, active life - a true example of someone making the best of their situation, and what we hope for all patients.  I thought his explanations of the science were detailed and approachable to the layperson (though to be fair, I am not a layperson).  I would recommend this book to anyone wanting to learn more about the disease, whether they have MS or are a loved one of someone with MS, or even a healthcare practitioner such as myself trying to get a better grasp of the very variable symptoms and experiences people have.
3575003
This book reveals the pain and lose that a family goes through when dealing with Alzheimer's but it is way more than that. Carlen finds himself while on the journey to making peace with his wife's disease.  We all suffer pain and lose in our lives and until we find peace within ourselves our suffering is for not and we will not able to help others. This book helped me finds ways to work on my own life journey to find greater hope, love and joy.
1563749
My best friend and husband recently died of ALS.  I only wish I would have read her book before he died so I could have
applied her helpful suggestions for making the best out of every precious moment during our own battlefield experience.
This book would be helpful for anyone going through a time of suffering.
1384561
The author gives us a highly personal and intimate narrative in this autobiographical jewel. He talks about bipolar disorder, not as a weakness but as a long road that he has to follow while he is searching for his identity. At times, he can be hypersensitive; at other times, he can be serene with a remarkable interior strength. He has been fighting this disease for a major part of his life and has finally found his inner peace in Buddhism. A must read for those who want to better understand this disorder, because here, we are far from medical literature and clichs; we actually accompany the author for about 20 years of his life, and witness his struggles, his life, his resurrection.
823029
This book by Dr. Paul Lanier is a modern day commentary on God's faithfulness in the midst of Job like trials. His personal meditations while trapped in his failing body on God's character, goodness,and reign are of great encouragement to those who know someone with ALS.
3397076
Phyllis Langton's "Last Flight Out: Living, Loving and Leaving" is the true story of a man dying slowly from ALS (Lou Gehrig's disease). The disease gradually robs him of his physical capabilities as it progresses to his ultimate, unavoidable death. In learning how he and his wife cope with the disease, the reader is surprised to find their focus is on love, life and humor. The valuable lesson in this book is that it is possible to live life to the fullest all the way to the end--even in dire circumstances.
3332894
my husband has ALS.  this is for when I cannot understand what he is trying to say.
3435621
ALS is a terrible disease, but Susan did a great job expressing herself.  I cried and laugh.  It reminded me not to wait until I retire to fulfill my bucket list dreams.  I would recommend to friends.
4265832
Having gone through my own parent's death, this book resonated with me on many levels.  Dan Marshall is so honest, and so awesomely funny, in his touching portrayal of his father's decline from ALS.
1633782
I loved this book. While Ruthie, the author's mother, was nominally the sick person, her illness rippled through the family. What struck me immediately was that everyone involved had a different way of coping. The father was angry with the narrator's efforts to provide practical help to her mother, and Ruthie was angry and sad because her husband still expected her to handle "women's" chores. Every time the narrator went to check on her parents, she walked on eggshells. What's wonderful about this memoir is that it takes a calm look back at the trajectory of the disease, including the physical changes and efforts to provide psychosocial support to a couple going through a change neither expected. Anyone who is walking the walk with Lynn as she tries to support her parents will see that "taking care" of someone with ALS puts you in the thick of a family drama that you never expected.
1598891
I loved this book, i'd recommend it to anyone who struggles with a long illness, it talks about the inner processes that go on within us when we are stopped in our tracks by illness, the things we have to learn to deal with when we are taken out of our daily lives because of incapacity from illness. A very deep look into the inner worlds of those who are living with the effects of illness.
3181532
This is an aresome memoir of David's life as a quadriplegic. It tells about an array of challenging ordeals, he has encountered over his life. He persevered when the road, at times was rough. I am also a quadriplegic of 34 years, and I can truly testify as to what he had to go through.
Good luck in all your endeavors which you wish to pursue.
May God bless you.

Dorothy Alford
754560
A compelling story of courage, problem solving, and family caring in the face of a devastating disease.  Sonal does not let ALS define her.