Nusrit Shaheen Nusrit Shaheen Nusrit "Nelly" Shaheen (born 1984) is the longest-living survivor of harlequin-type ichthyosis in the United Kingdom and one of the longest-living in the world. She lives in Coventry, and was one of nine children. Four of her siblings had harlequin, but died at a young age. Many survivors of harlequin are predicted to die before or during their teens, but Nelly is now in her 30s and contributing to living a long, healthy and rewarding life. Nelly's medical condition, harlequin-type ichthyosis, is a seriously rare genetic condition which means her skin forms up to 10x more than the
Ichthyosis prematurity syndrome Ichthyosis prematurity syndrome Ichthyosis prematurity syndrome (IPS) is a dermatological disease with known genetic causes. This syndrome is a rare subcategory of autosomal recessive congenital ichthyosis (ARCI). It is associated with complications in the mid-trimester of a pregnancy leading to premature births. Although most prevalent in individuals of Scandinavian origin, there have also been scattered cases in people of Japanese, Italian and Indian ethnicity. This disorder is also referred to as ichthyosis congenital type IV. The symptoms associated with the disorder are often confused for other dermatological disorders. The symptoms below are ones specifically associated with IPS. Pregnancies that have