Nusrit Shaheen Nusrit Shaheen Nusrit "Nelly" Shaheen (born 1984) is the longest-living survivor of harlequin-type ichthyosis in the United Kingdom and one of the longest-living in the world. She lives in Coventry, and was one of nine children. Four of her siblings had harlequin, but died at a young age. Many survivors of harlequin are predicted to die before or during their teens, but Nelly is now in her 30s and contributing to living a long, healthy and rewarding life. Nelly's medical condition, harlequin-type ichthyosis, is a seriously rare genetic condition which means her skin forms up to 10x more than the
Ichthyosis hystrix though some experts believe that it may have been a type of epidermolytic hyperkeratosis. From the history of the Lambert family the disease appears to have been an autosomal dominant condition. HID syndrome is also known as ichthyosis hystrix, Rheydt type after the German city of Rheydt near Düsseldorf where it was first discovered. Symptoms are bilateral hearing loss and spiky hyperkeratotic masses which cover the whole body though the palms and soles are less badly affected. It can be differentiated from KID syndrome which also has symptoms of deafness and ichthyosis by the different distribution of hyperkeratosis. It is